The Anaemia Community has launched in London
- Anaemia affects 2 billion worldwide, nearly 4 million in the UK
- The “Anaemia Communities” role is to be the focal point for the collaboration of all stakeholders in the Anaemia conversation. To act as a facilitator of better care and treatment for people living with Anaemia
London Friday 12th July 2019: The “Anaemia Community” formerly known as the “Anaemia Manifesto” which has been rebranded and repurposed to help build the momentum around Anaemia and iron deficiency.
The Committee has decided to build the community by inviting all those that are affected by Anaemia and Anaemia iron deficiency to champion the Anaemia Community in order to start to drive and build a movement across all stakeholders to amplify the collective voice.
Anaemia and Anaemia iron deficiency affects 2 billion worldwide, and there is no central hub for conversation and collegiate working. The Anaemia Community has been designed to advocate for building awareness and changing policy to satisfy the patient need. Building a robust online community of people affected by the commission will enable the community to provide insights from those living with the condition. This will help all stakeholders influence and shape policy from the patient need.
The website is designed to centralise resource for education and a hub of community activity to help enhance learning and connectivity for patients and healthcare professionals alike.
The membership of the Committee includes patients, patient-led organisations, charities and healthcare professionals. Linked into the Committee is a patient panel, chaired by an independent expert patient who acts as an advisory board to the Committee to ensure the activities and decisions maintain their patient centricity, fed back through the patient committee member.
Cello Health acts as the Secretariat for the Committee. The Anaemia Committee is funded by unrestricted education grants and the community work under the guidelines of the ABPI code of practice and relevant device codes of practice.